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my name is
Bill Jones, 58 years old, and i live in a market town called Ormskirk in
Lancashire, 15 miles from Liverpool, in the OK, i have been a urostomate
for 15 years due to continually having urinary problems,,, resulting in
a paralitic bladder,,,,,,and major problems that this incurs,,,,,,,i had
my urostomy done and it changed my life,,,,and the freedom it gave me
instead of moving from toilet to toilet was immense,,,,,,,5 years ago i
developed an ulcer near the stoma site,,,,,,,and after almost a year of
trying to clear the problem,,,,,using every conceivable concoction it
was decided to re-site the stoma (even then the old site took another
year to clear up),,,,,,,,however from the outset the new site has proved
most problematical with the stoma both retracting and decreasing in size
(it is now down to to 11mm in width) and whilst it will never close up
it is proving a great problem with leaks due to the retraction,,,,,,and
the fact that the hole is right up against the normal skin wall with
resultant leaks,,,,,,,,my stoma nurse and i have exhausted all avenues
of ideas to combat leaks,,,,,and the problem has been exacerbated by the
fact that i i have a parastomal hernia around the present
site.........in addition,,,,,,late last year i developed a severe
precancerous condition in my eosophagus which necessitated the removal
of my eosophagus ,,,,,,,,,,and this has resulted in me losing 5 and a
half stone in weight which has more than highlighted the
hernia,,,,,,,,,,i have been referred to a designated senior specialist
urologist who says that the stoma/hernia is a mess and says that the
only option is to re-site the stoma somewhere else and also try and sort
out the hernia,I know this all sounds like a category of disasters but do other people
with parastomal hernias work through their problems?
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