Irrigation Pen Pals

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Irrigation Pen Pals

Post your Irrigation Story

Your name: Katie

E-mail address:

Country: USA

Comment or story:      My daughter, Natalie, was born on October 19th, 2007, with no anus. She was taken to Vanderbilt Children's Hospital only a few hors after birth. Two days later, she had a colostomy. They are going to be able to fix it when she's about 18 months old. She has a few other minor problems, nothing life threatening, that require surgery to. All together there will be about 3 surgeries for her to go through. I'm just looking for someone to talk to that is going through, or has gone through the same thing. She is the only baby born in my town with this problem so it's really hard to talk to anyone about it.

Wednesday, August 12th 2006 - 07:38:43 PM

Your name: Dee Leeman

E-mail address: E-mail

Country: USA

Comment or story:      I usually wear a metaspore (I probably spelled this wrong) on a daily basis, post irrigation, while these patches are great under your clothes, gym work, and all around very comfortable, they are not good for swimming. (spongy part can't be exposed to water) Any advice out there for type of non-bag covering or patch that would work for this?

Tuesday, August 8th 2006 - 07:38:43 PM

Your name: Stella

E-mail address: E-mail

Country: USA

Comment or story:      I have a ostomy for he past 2 years and I have never had to irrigated no one told me about it. I go to the bathroom a lot all times of the day. I would love to know how to control it boy do I feel stupid about this. Can anyone explain to me what to do.

Monday, June 18th 2006 - 07:38:43 PM

Your name: Tami

E-mail address: E-mail

Country: USA

Comment or story:      Hi, I'm 48 and had a permanent colostomy in 2/02 due to colorectal cancer. No big deal to me! I'm alive to see my beautiful grandchildren and I can't ask for anything more special than that can I? It also helps to have a good sense of humor! I also irrigate, which has been a big help. Most days I just wear a band-aid over my stoma and do whatever I want to do. I urge anyone that is a cadidate for irrigation to go for it! I would love to hear from anyone, especially anyone near my home state of Alabama! God Bless.

Wednesday, June 14th 2006 - 07:38:43 PM

Your name: Romy

E-mail address: E-mail

Country: UK

Comment or story:      Hi! I had my Op at the end of 1999 - just before the new Millennium. I have an ACE pin and have to irrigate every day to empty the bowels.
If anyone wants to contact me for help and reassurance with this procedure, please get in touch!

Sunday, April 23rd 2006 - 07:38:43 PM

Your name: Frances Freewater

E-mail address: E-mail

Country: USA

Comment or story:      I have been irrigating for two years.   I've just figured out what to do but I know that there are some brilliant ideas out there.
I wear a drainable because I sometimes get back flow the morning I irrigate.
I've just read to cut back on the water. Which I'll do.
I clean the sleeve out by filling up the irrigating bad with cold water and white vinegar.
That doesn't quite do the whole job but not bad.
Any other ideas I'm missing.

Wednesday, June 7th 2005 - 07:38:43 PM

Your name: autodraw

E-mail address: E-mail

Country: Canada

Comment or story:      Permanent colostomy Oct. 1, 2001, chemo & radiation for six months, started irrigation after 9 months -- a godsend. This has changed my quality of life dramatically -- no more bags!! I encourage everyone with a sigmoid or descending colostomy to look into this.

Thursday, March 9th 2005 - 07:38:43 PM

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Your name:	Katie
E-mail address:
Country:	USA
Comment or story:	My daughter, Natalie, was born on October 19th, 2007, with no anus. She was taken to Vanderbilt Children's Hospital only a few hors after birth. Two days later, she had a colostomy. They are going to be able to fix it when she's about 18 months old. She has a few other minor problems, nothing life threatening, that require surgery to. All together there will be about 3 surgeries for her to go through. I'm just looking for someone to talk to that is going through, or has gone through the same thing. She is the only baby born in my town with this problem so it's really hard to talk to anyone about it.

Your name:	Dee Leeman
E-mail address:	E-mail
Country:	USA
Comment or story:	I usually wear a metaspore (I probably spelled this wrong) on a daily basis, post irrigation, while these patches are great under your clothes, gym work, and all around very comfortable, they are not good for swimming. (spongy part can't be exposed to water) Any advice out there for type of non-bag covering or patch that would work for this?

Your name:	Stella
E-mail address:	E-mail
Country:	USA
Comment or story:	I have a ostomy for he past 2 years and I have never had to irrigated no one told me about it. I go to the bathroom a lot all times of the day. I would love to know how to control it boy do I feel stupid about this. Can anyone explain to me what to do.

Your name:	Tami
E-mail address:	E-mail
Country:	USA
Comment or story:	Hi, I'm 48 and had a permanent colostomy in 2/02 due to colorectal cancer. No big deal to me! I'm alive to see my beautiful grandchildren and I can't ask for anything more special than that can I? It also helps to have a good sense of humor! I also irrigate, which has been a big help. Most days I just wear a band-aid over my stoma and do whatever I want to do. I urge anyone that is a cadidate for irrigation to go for it! I would love to hear from anyone, especially anyone near my home state of Alabama! God Bless.

Your name:	Romy
E-mail address:	E-mail
Country:	UK
Comment or story:	Hi! I had my Op at the end of 1999 - just before the new Millennium. I have an ACE pin and have to irrigate every day to empty the bowels. If anyone wants to contact me for help and reassurance with this procedure, please get in touch!

Your name:	Frances Freewater
E-mail address:	E-mail
Country:	USA
Comment or story:	I have been irrigating for two years. I've just figured out what to do but I know that there are some brilliant ideas out there. I wear a drainable because I sometimes get back flow the morning I irrigate. I've just read to cut back on the water. Which I'll do. I clean the sleeve out by filling up the irrigating bad with cold water and white vinegar. That doesn't quite do the whole job but not bad. Any other ideas I'm missing.

Your name:	autodraw
E-mail address:	E-mail
Country:	Canada
Comment or story:	Permanent colostomy Oct. 1, 2001, chemo & radiation for six months, started irrigation after 9 months -- a godsend. This has changed my quality of life dramatically -- no more bags!! I encourage everyone with a sigmoid or descending colostomy to look into this.