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Your name: Jennea R.
E-mail address:
Country: USA
Comment or story: I was diagnosed with Hirschsprung's disease at the age of fifteen. Before that, I could never go to the bathroom, and had to go into the hospital to get clean outs. So then one morning I woke up and had a fever, nausea, and couldn't control my bowel movements at all. So I ended up going into the hospital and after two full thickness rectal biopsies, was diagnosed with Hirschsprung's disease. I had to get a loop colostomy, and so far I have had it for 3 months. I am due to get reversal surgery in about 3 more months. I usually have lots of pain in my stoma during the morning, and also sometimes during the day time. Is this normal? Also, what should I expect for the reversal surgery?
Monday, March 24th 2008 - 12:38:43 PM
Your name: LC
E-mail address:
Country: USA
Comment or story:      Hello ! I have a j pouch for 4 years. My mom had hers 16 years. She was my biggest information on how to handle the different problems. She unfortunately passed away a year after I had my surgery. I would like to talk with anyone that could share how they handle different problems from foods that hate me to the relief of gas. Thank you !
Monday, March 24th 2008 - 12:38:43 PM
Your name: Susan
E-mail address:
Country: Scotland
Comment or story:      Hi I am 44 years of age and had an Indiana Pouch put in as I had invasive bladder cancer i would like to talk to people who has had the same surgery as I get frustrated as I don't know many people that has had this type of surgery as I don't think it is very common. 
Thursday, March 5th 2008 - 12:38:43 PM
Your name: Natalie
E-mail address:
Country: Scotland
Comment or story: I started to get ill in Feb 07 and was diagnosed with UC in Aug and in September 07 I got my operation. After a contracted c.diff I was let home a few weeks later then a day after that i was back in for a week. Since then had a few problems. Apart from that i am ok now. Not sure if i am getting the reversal but i might. But I am only 16 so i have my life ahead of me and dunno if I want to go threw another surgery and after getting c diff once I don't want to go back really. 
Tuesday, January 29th 2008 - 12:38:43 PM
Your name: Larry Trapp
E-mail address:
Country: Evansville, Indiana, USA
Comment or story: As creator of "Ostomy Pen Pals", I apologize for any inconvenience that the "Spammers" have caused the innocent participants of this website.  Meanwhile, I have made necessary security arrangements to see that potential "spammers" will be rendered ineffective at any further Email harvesting attempts.

Let us please continue our mission in helping fellow ostomates by exchanging Email messages.  I certainly appreciate your trust and confidence in our mission to help fellow ostomates.

Sincerely,
Larry Trapp    

Wednesday, July 25th 2007 - 12:38:43 PM
Your name: Henry
E-mail address:
Country: USA
Comment or story:     I have had a continent ileostomy since 1976.  It was done at Mt. Sinai Hospital in New York by the late Irwin Gelernt, M.D.  About three years ago the valve started to seriously slip and I was contemplating having a revision done.  However, since I retired from my job (with a very long commute) last year, the situation has improved tremendously.  My theory is that since there was less pressure on the valve (it was almost impossible to go to the bathroom while traveling to work), it has somehow healed itself.
There are very few surgeons who are familiar with this procedure, and those that are will retire soon.
Feel free to contact me.
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