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Ostomy Association
of Southwestern Indiana
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Contents:

TERRIFIC TRAVEL HINTS
HERBS AND THE INTESTINE
CONCERNS WITH A J-POUCH
WHAT IS THE RIGHT WAY
TO USE SKIN BARRIER PASTE
STOMAL STENOSIS
DEHYDRATION AND THE ILEOSTOMATE
SOME OF THE BEST BASIC OSTOMY HINTS
PUSH THE SKIN, DON'T PULL THE TAPE

Volume 34, Number 10  July, 2007



TERRIFIC TRAVEL HINTS
Via: “It’s in the Bag, Hartford Cecil Counties, MD & Indianapolis Chapter
1. Change your pouch 24 hours before departure to assure proper complete adherence.
2. Take twice as many supplies as you think you may need. Pack these in your carryon case along with a change of clothing for emergencies.
3. When traveling by air, car, train, pony express, burro, or camel, during a hike or bungee jumping, protect supplies from extreme heat and cold. New ostomates who ignore this caution may have flanges that won’t stick or plastic pouches that crack.
4. Air pressure in planes may affect the fullness of your pouch, so empty it before you board. Take supplies in carryon and don’t dislodge your pouch by lifting a suitcase into the overhead bin. Sure, we know we are repeating not to check your supplies, because it’s that important.
5. As you pack, separate liquids from tape, pouches, and flanges. Emergency supplies should include Baggies or plastic bags you can tie for disposal of used pouches.
6. Make a list of all supplies you use with their stock numbers. Pack this with a list of ostomy chapters in the area you plan to visit.
7. Colostomates should not irrigate with water unfit to drink. Take a water purifier. To make sure you can hang your bag, take an over the door hook and a package of shower curtain rings that open and close like a safety pin. These rings can be hooked together to make a chain of whatever length you need.
8. Urostomates need large plastic bags that zip close for bedside overnight drainage. Attach the bag with a clothespin to a wastebasket and then zip close to the drain tube.
9. Wherever you are, when you can’t find a bathroom or see a sign that says it’s off limits for public use, find someone who knows your language and say, “I have a medical emergency and must use the bathroom. Where is yours located?” Remember, a pouch begging to be emptied is a potential disaster!

HERBS AND THE INTESTINE
Via: Cheers & Tears, & Greater Cincinnati Chapter
Herbs have long been proclaimed nature’s remedy for many of our maladies. The fact is that 40% of all prescribed drugs are based on chemicals from plants. The following are a few examples:
*  The juice of Aloe leaves is very helpful in caring for the skin around the stoma.
*  Bay leaves, added to slow cooking foods are said to “tone” the digestive tract. They also relieve cramps and expel wind from the stomach and bowels.
*  Cayenne is claimed to have such benefits as easing congestion, warming your feet, and aiding digestion.
*  Dill is an old remedy for stomach ulcers, probably because of its calming effect. But it will also reduce flatulence when used as a seasoning.
*  Garlic has long been proclaimed to be an aid to the immune system and effective against colds, flue and bronchitis. It, also strengthens the digestive system and helps in gastro-intestinal disorders. It works better raw than cooked.
*  Parsley is nature’s finest deodorant. It is a breath freshener but also reduces odor in the stool. Chew a couple of sprigs of parsley, especially after eating Garlic.
*  Thyme in tea is proclaimed to be a cold remedy assist.

CONCERNS WITH THE J-POUCH
By Dr. Tracy Hull, Cleveland Clinic
Patients with ulcerative colitis (UC) who were treated surgically previously underwent a total proctocolectomy with permanent ileostomy. However, in the late 1970s, when the pelvic pouch (J-pouch) procedure was first introduced, the surgical approach to UC was revolutionized. The pelvic pouch has now become the "gold standard" in surgical treatment. Although the operation avoids a permanent stoma and usually improves the patient's quality-of-life, it does not restore the bowel function to normal. Patients can expect to have many stools per day - as few as two or three for the fortunate few and as many as 40 for the less fortunate, with the average being around eight - and these stools are pasty to watery in consistency. As with any bowel operation, patients experience many changes, both short - and long-term. This article will discuss some of the potential long-term problems that patients with a pelvic pouch may experience. Diarrhea: The function of the pelvic pouch will change over the first year - improve as the pouch stretches and becomes larger after the ileostomy closure. However, there are still some people who have 20 bowel movements or more, daily. Dietary changes may help these people to decrease the number of bowel movements. Foods, which have been found to help decrease the water content of the stool, may help to reduce the number of trips to the toilet. These foods include applesauce, bananas, rice, creamy peanut butter, potatoes, cheese, marshmallows, pretzels, toast, yogurt and tapioca pudding. Bulking agents such as Metamucil, Citrucel, Fibercon or Konsyl also help thicken the stool. These products are ingested with little fluid to allow extra fluid in the gastrointestinal tract to be absorbed. A doctor to slow down stools sometimes prescribes medications such as Lomotil or Imodium. They should not be used without your doctor's approval. Limiting the intake of fried and fatty foods and milk products may decrease diarrhea. Reaction to foods varies with each individual, and other foods may be found to increase the amount of stool produced or change the consistency. Bowel obstruction and emptying concerns: To construct the pelvic pouch, the small bowel is stretched, along with the blood vessels that provide blood to the pouch, in order to reach the anus. This stretching may predispose a patient to bowel obstructions from scar tissue, twisting or kinking; surgical intervention may be required to relieve the obstruction. Another concern, which may lead to problems with pouch emptying, is a narrowing or stricture at the pouch-anal joint (anastomosis). This is diagnosed by an exam of the anal area. Strictures may cause symptoms that result in a progressive need to strain more and more to move one's bowels. Usually, dilation solves the problem and rarely is an operation needed to correct the problem. Pouchitis: Pouchitis is a non-specific inflammatory condition of the pouch. The cause is unknown, but it occurs much more frequently in patients who have a J-pouch for IBD versus those who have one for familial polyposis. Patients are at risk to develop pouchitis over their entire lifetime, as long as they have a functioning pelvic pouch. For some patients, pouchitis is an isolated event, but others can experience multiple episodes or even continuous "chronic pouchitis." The symptoms are similar to a mini-attack of UC. Patients report increased bowel movements, pelvic pain, abdominal cramps, malaise, fevers or blood in their stools. However, it is common for patients with a pelvic pouch to notice blood on the toilet paper with normal function of the pouch and yet not have pouchitis. The most common treatment is Flagyl (metronidazole) 750 to 1500 mg daily for 7 to 14 days. This is effective about 85% of the time. Improvement is usually seen within 48 hours.

WHAT IS THE RIGHT WAY TO USE SKIN BARRIER PASTE
Via: www.convatec.com &Hemet-San Jacinto, CA.
There are a variety of types and brands of skin barrier pastes, so check with the manufacturer of the brand you’re using for specific instructions. Skin barrier pastes are used as “caulking” to fill in the space between the stoma and the opening in the skin barrier. Skin barrier pastes are not “glue”, and should not be used to keep the pouch on the abdomen. The pastes fill in gaps or uneven areas, protect the skin around the stoma, and can increase wear-time. Generally, this is the procedure you should follow if skin barrier paste has been recommended to you.
1. Remove the soiled wafer and gently clean the skin around your stoma in the usual way. Pat the skin dry.
2. Apply a bead of skin barrier paste around the stomal opening on the body side (sticky side) of the skin barrier/wafer or apply the paste to the skin immediately surrounding the stoma.
3. Let the paste air dry for about one minute.
4. Gently place the wafer over the stoma and on to the skin. Hold in place for a few minutes, allowing the warmth of your hand to mold it to your abdomen.
5. Attach your pouch to the flange on the skin barrier.

STOMAL STENOSIS
Via:Ralph Kaye Chapter, San Antonio, TX
Stomal Stenosis is a narrowing of the lumen of the stoma as it passes through what is referred to as the fascia (located an inch or so below the ostomy opening) or a narrowing of the ostomy opening due to a tightening of tissue about the ileum or ostomy. The peristomal hernia is a widening of the defect of the abdominal wall through which the ileum passes to reach the surface. If this defect becomes too large, then more ileum can move into the space between the skin and the lining of the abdominal cavity. The ileum in this space can then twist or kink on itself and cause a blockage. Any type ostomy can become stenosed. Your doctor can help resolve this by several methods. Stenosis that develops right after surgery is usually attributed to mucocutaneous separation—the stoma separating from the skin to which it is sutured. Stenosis that develops later may be caused by disease (Crohn’s or tumor), excessive scar tissue formation at the skin or fascial level, trauma resulting from improperly fitting equipment, hyperplasia or chronic irritant dermatitis or peristomal skin. Preventive measures include maintenance of a secure pouch seal to prevent peristomal skin breakdown, urine acidification measures, prompt treatment of hyperplasia and awareness of signs and symptoms of partial stoma obstructions.

DEHYDRATION AND THE ILEOSTOMATE
by: Terry Gallagher, UK (Edited & Excerpted)
When we had our ileostomy surgery, our colon was removed. In a normal person (that is a personwith a working colon), the colon is responsible for absorbing most of the water we drink and that is contained in our food. In addition, electrolytes such as sodium and potassium, essential to maintaining good health, are absorbed there. Removal or disconnection of the colon immediately causes the first problem because of the removal of the ileo-valve. This valve is between the ileum or small intestine and the colon where the appendix is attached. Its purpose is to hold back the food in the ileum to enable it to be absorbed better. When we lose this valve, food and water pass through our digestive system faster, so less is absorbed, often accounting for weight loss when a person first recovers from the surgery. The ileum does absorb more water to compensate, but still absorbs much less than the colon did. Waste from the ileum normally has about 30% of the water remaining, while waste from a colon has about 10% remaining-quite a difference. In addition, we lose ten times as much sodium and potassium as someone with a colon. Because of all this, anything which upsets the balance in our bodies has a much faster effect, as well as happening much quicker than in a person with a colon. A typical example is gastroenteritis. A normal person with the same degree of infection may well be sick and have diarrhea for a couple of days, whereas we may well end up in the hospital as an emergency. This may apply to other problems which upset the digestive system’s balance as well as gastroenteritis. When these occur, a normal person may experience nausea, vomiting, fever, abdominal cramps, bloating, sometimes bloody diarrhea and signs of dehydration (including the veins on the back of the hands and elsewhere becoming invisible). Ileostomates may experience these signs differently. My ileostomy filled up very rapidly with fluid. On emptying, the pouch refilled in minutes. I felt nauseous and developed abdominal discomfort. I rapidly began to experience the symptoms of dehydration which include a dry mouth, decreased or virtually non-existent urine output, heart irregularities and dry skin. In my case, I could see my urine output had ceased as I have a urostomy as well. This is a medical emergency! In less than a 15 minute trip to the hospital by ambulance, the driver remarked that I had visibly deteriorated during the trip, even with an iv of saline being administered. If hospitalized for dehydration, the ileostomate may expect iv solutions to be given. The fluid given will be saline, potassium, or potassium and glucose to replace those essential electrolytes lost as mentioned earlier. Expect an EKG to check for heart problems, bloods to be taken, and stool and urine samples (to check for infection) and chest and abdominal X-rays . Dehydration is a serious medical emergency that can lead to shock, unconsciousness and death if not treated soon enough. Delaying treatment can also lead to kidney damage, which may be permanent, requiring life long dialysis or a transplant. If you become ill with diarrhea, vomiting and fever that persists and you find yourself with a pouch which is filling and refilling with fluid and start to develop a dry mouth with abdominal pains, seek emergency treatment immediately. Normal people may sneer that we’re making a lot of fuss for a simple “tummy bug” — we’re not! It is much more serious for us than for people with a colon.

SOME OF THE BEST BASIC OSTOMY HINTS
Via: The Right Connection, San Diego
Don’t believe as if having an ostomy makes you less of a person or some freak of nature. There are lots of us and most of us are glad to be alive. Build a support system of people to answer questions when you have a problem. Consider our ETs and your officers who are listed in this newsletter. Don’t play the dangerous game of making your appliance fail by over taping or putting off a change. There aren’t any prizes given for the longest wear time except accidents. Don’t wait until you see the bottom of your supply box before ordering more. Always count on delays in shipping, holidays, etc. when calculating what is needed. Zip-lock sandwich bags are useful and odor-proof for disposal of used ostomy pouches. Don’t get hung up on odors. There are some great sprays and some internal deodorants...Remember— everybody creates some odors in the bathroom. Don’t feel you are an exception. Hydration and electrolyte balance is of vital importance. Be sure to drink enough fluids to maintain good hydration, ileostomates especially. Read and learn all you can about ostomies. You never know when you may find an opportunity to educate someone about the life-saving surgery that has extended so many lives. Learn to be matter of fact about this and never embarrassed. Few folks get out of this life without some medical problems and unpleasant situations with which to cope. You may be amazed at how people will admire your adaptability and courage. In the beginning after surgery, almost everyone experiences some depression. If you fit into this category, you are certainly not alone. But it need not be a lasting condition. Try something as simple as walking….long walks. If the depression seems to linger, don’t be afraid or ashamed to seek help. There is help out there! The bottom line is— We are alive! In other times, in other countries, we might not be. Medicine and techniques today have given us an opportunity to experience this second chance. It is certainly an opportunity worth accepting and exploring. The most important part of you as a human being has not changed.

PUSH THE SKIN, DON'T PULL THE TAPE
Green Bay News Review
Damaging the skin around the stoma (or anywhere else), is asking for infection. When removing the pouch or wafer, don't peel your pouch away from your body; rather take hold of an edge of the adhesive section or tape. PUSH THE SKIN AWAY FROM THE TAPE. Older people and babies have thinner skin; skin can peel off by pulling the tape. Take a good look at what is happening when the tape is pulled. The tape pulls the skin upwards, dragging the skin with it until it is pulling hard enough to break loose. This can be painful. See what happens when you push the skin away from the tape. It doesn't hurt and the outer layer of skin should not tear off. Yanking fast is not the best option either; take a good look at the skin afterward. If the skin becomes damaged, digestive enzymes in the discharge will excoriate (remove) your skin quicker and deeper than if your skin is in good condition, or protected with some sort of skin preparation. The farther away from the rectal area the stoma is, the stronger the digestive enzymes in the discharge are, and the sooner your skin will become excoriated. Learn to treat skin gently!